WHAT????

So I went to give blood again today and they were running about 10 tests on me for UMC Las Vegas.  I am in the Quest Lab and the front desk girl (who knows me since I am there every week)  tells me that she can't do 2 of the test because it is spinal fluid and they have to do a spinal tap.  It was a quiet waiting room and you could hear about 5 people give an UGH all at once.  We all started laughing and I said "Why did you tell me that?"  she said "I have to tell you it is in the spine."   So here I was thinking Oh man, every time I think I am handling things really well I get another curve ball.

I have just come to terms with accepting a tube in my stomach in the next month and now I have to process getting a needle in my spine?  It was bad enough doing it twice during labor but again??  REALLY??  Come on, give me a break!!!! 

Sometimes I think I just want to break down and crawl into a ball and cry.  But I do not let myself get down- I am not sure if I would even know how to break down and cry at this point.  I have to keep going for my kids and I have to keep working to make money until I can't work anymore.

It is hard to have to keep letting go of things- I can't exercise right now because I get winded and my body isn't toned which drives me nuts- I can't eat the foods I want- or go dancing- or keep the house in perfect condition like I want- I can't take my kids to disneyland or any mini vacation anymore-- I can't work and do sales like I want- I can't make long term plans or make future plans- all of this drives me NUTS!!!!!

Ok done with my pity party!  Doug is a guy who had a transplant the end of Feb. in Pittsburgh and is coming back to Vegas this week, I can't wait to go out to dinner and hear all about his experience.  Most of the patients are elderly so it will be so nice to talk to someone in their 20's who has gone through this!!  I look forward to the day I get to post I am on my way back to Vegas!    Congrats DOUG!  I am so happy for you :)

PS- still no word on UMC Tuscon and Sara....BOOOO   they need to move faster!! 

So Bad.....

My kidney doctor pushed my appointment back to Friday.  I went to give blood and my veins have been stuck so much they were not able to give blood so we had to wait and try again.  Hopefully my numbers are not too bad tomorrow.

On the bight side-I know this is bad...but my general surgery appointment was re-scheduled until next week.  I know I should not be happy to have the dialysis pushed back but I am.  This means a few more weeks before we get ready.  My appointment next week is just a consultation so I still have time before we do the tube into my stomach.

Oh well- I am still going out on Friday even if it isn't my last weekend of freedom I am going to pretend it is...maybe I will order a different type of salad for dinner and mix it up a bit...LOL.

Groundhogs Day

I feel like it's Groundhogs Day again and again...start my week, give blood, give blood again, visit the doctor, work, visit another doctor, work, get sick, work, hang out with my kids and friends and start the week again.

I am going CRAZY!!!  I wish I could take a vacation :)  So to sum up my week I have given blood at UMC to get on the donor list for a cadaver. Hopefully I will be on the list in the next few weeks so my back up plan is in place.

UMC Tuscon is moving but slow.  We are still waiting to hear if Sara is a go for donor and waiting for a date for transplant.

In the meantime since my kidneys are at about 7% I have to start dialysis.  So on Thursday I meet with my kidney doctor to review my numbers- a weekly visit.  Then on Friday I meet with General Surgery to have my consultation to get the catheter in my stomach for PD, which is a form of dialysis 10 hours a day 7 days a week.  Once I get the routine I will be able to do this from home at night.  But it still grosses me out to think I have to have a tube put in my stomach.

I can't wait for Friday to have a little ME time and go out with Rumi.  It will be my going away party to my normal body and freedom of not being tied to dialysis.

Last weekend was spent with the kids and friends all weekend.  We did a lot of eating out- which isn't as much fun for me but thank goodness most places have Caesar Salad so I can at least order something!!

Here are a few photo's of our fun weekend and past week. 

At 5 guys before Dad Left for airport.

At Grimaladi's playing with pizza dough.

At Jason's Deli- Jo with her stache

At Sweet Tomatoes with Besties!

Girls at Rango!

Future Bunnies!!

Alexa's teacher has her hooked on NCAA :)

Not Yet...

No news yet- just waiting on Sara's next test results next week.  I am seeing my kidney doctor weekly now so on Thursday I will know again if I get to go another week without dialysis.   I am feeling good and getting back to routine which is nice.  Once again so glad it is the weekend!!!!

Dad went back to Minneapolis tonight, so I hope he enjoyed the warm weather while he was here!

Photo of the girls and I at dinner with Dad before we took him to the airport.  Jordan's allergies were killing her so don't mind the sad face!!

Free at last!!!

So yesterday my neph (kidney doctor) said if my levels go up I would need emergency dialysis.  This morning they went up .10 so I knew it would be a judgement call.

Since I feel good and not sick he is releasing me back into the wild!!!  Although I have to be monitored daily with blood tests and meetings that is only 1 hour each morning so I will take it!

I am hoping to avoid dialysis all together and go right into transplant but I will let you know :)

2 of my iron infusions are done...just need 3 more!  Here is me during my iron treatment.

I also want to say thank you to: jane, garry, deacon, alexa, jordan, pat, gary, rumi, holly, khamla, stefan, elisa, collette, sara, ethan, mike, rhian and many others for the flowers, magazines, stopping by for gatherings in my room, going to my dinner party even though i couldnt be there!!!  And thanks to all my girls back home who reached out by phone :)

Oh Boy.....

Well this might be it!  Tuscon may be around the corner.  To make a long story short my kidney's are getting worse so I have to stay in the hospital another day to see if it was the blood pressure medicine that made them get worse or if they are shutting down for good.

There are so many possibilities and options I really can't list all the outcomes, all I can say is we need to wait a few days to see what the plan is.

At least I have Internet now!!!!!

This resort sucks!!

I am going to have to find the manager and complain!  The room service is too slow, housekeeping comes in at all hours and the movie selection isn't very good.  At least i was upgraded to a room with a view of tjmaxx...how lucky is that!!

Ok really the staff has been great!  Food really does sux.  They are keeping me one more night to make sure i am stable.  Still no dialysis as we are holding off for transplant.  Doctor said if saras test come back good it should only be a few weeks!  Cant wait to be back to a normal life!

Also there is an older lady who has been crying since last night...she sounds like a few month old baby so i get to listen to that half the time. I almost want to go hold her and tell her it is going to be OK.  Instead i put on beats by dre headphones! Thanks dad :)

Look who came to see me!  Sorry about my bad grammar...on my cell typing.