What was I thinking???

 Note to self:  It is better to be sick then have a hemocath in your neck.

OUCH!!!!!!!  Today I am regretting my choice.  2 weeks from today I will be on the operating table.  It is amazing the pain your body can endure.   And yes like Chuck said- the next time you complain about having allergies I am not going to give you any sympathy...do you see the tube in my neck? 

PS....pray for the victims of the tornado's...so sad!!  so sad!!!

Get out the bikini!!!

Well it seems I am going to be rockin a new body in my bikini this weekend.  Because I broke down and got the haemocath put in my neck/chest.  I was so sick the past couple of days- getting a catheter in my neck sounded better then being sick.

So this morning I went and had it done.  It hurts- not too bad but the top part has stitches to hold the tube so the stitches really hurt.  Now I get to do dialysis on Friday, I hope this makes me feel better because there are many things I want to do this weekend- including going out for a bit :) 

We like to hang at the pool a lot so I am not giving that up- just getting a new bikini that fits the tubes.
I know at my friends pool's it wont be a big deal but if we go to the apartment pools or hotel pools I might get a few looks but I think I really don't care.  I have to wear this tube until June so I might at well just make it an accessory :)

Now here is the main question- it hurts to wear regular shirts or undergarments (trying to be a lady)  so I really can only wear halter tops the next week until the stitches heal.  Do I just wear the tops and let the tubes hang out?  Even at school and scare the kids?  Or do I wear a small soft cardigan to cover it up- even in 90 degree weather?  What to do what to do....

Here are a few photo's to see what I am talking about!!  Ignore the orange color from the iodine.    Can you see the tube under my skin???  YUCK..not very sexy at all. 

May 12th

Looks like we are leaving May 9th for a May 12th surgery.  Just waiting for UMC to send the plane tickets so I know what flight we are on.  Booked the Radisson right by the hospital for family and where we will stay after we are let out.  They gave us a great transplant room rate so it was a better deal then most other hotels.

I really don't feel good again so I am going to decide on Monday if I am going to just go on bed rest for the next 2 weeks or if I am going to get emergency dialysis in my neck this week.  I think I am leaning towards the dialysis.  I never wanted it but I can't take the pain anymore.

Not sure when I will post again as it is getting harder each day to just get out of bed.  I am just trying to hold on for the surgery. 

They will take Sara's kidney first which should be about 3-4 hours of surgery start to finish then they will operate on me and put her kidney in- not sure how long it takes but I think I am longer then her.  Sara should be in hospital for 2 days but then she has to stay at hotel and come back to hospital for check ups for a few days after.  Within a week she will be back in Vegas but on restriction and can't even drive for a few weeks.  I will be in hospital for 4-5 days and then in hotel for up to 10 days they are thinking depending on how well Sara's kidney responds.  I can be in Tucson for up to 8 weeks but they think 1-2 weeks and I will be released back to Vegas. 

My family will post on my blog and put photo's hour by hour during the surgery so everyone can follow along with what is going on.   So be sure to mark your calendar for May 12th to check back on the blog to see how the operation is going :)  Wish us luck!  I can't wait to not be sick anymore.  Look out world...Molly is coming back! 

On the list!!!

UMC Las Vegas called and even though it doesn't mean much I am on the donor list!!!  YEAH :)  That means I am good to go for surgery.  And if anything happens and Sara can't donate I am now on the waiting list for a cadaver kidney.

Feel like total crap again today!  That shot to bring up my hemoglobin is not working at all,  I have no energy.

Will write tomorrow when I meet with the surgeon.

Holding On.....

Had insomnia- didnt fall asleep until 4:30AM.  Woke up today feeling awful!  Everyday it gets worse and worse...I hope I can hold on 2 more weeks :(  I know I don't post often about how I feel but it is usually like CRAP.

That's my post today!  At least the sun is shining so another day of sitting outside for spring break!!!

I'm leaving on a jet plane...

don't know when I'll be back again!!  Hopefully May 12th, that is the projected date.  We have to go down 1 week prior so they can run mutiple tests before the surgery.  My sister, me and my friends in Tuscon for a few days before we do surgery.....CRAZY :)  

Sara and I are meeting with the Chief of Transplant Surgery on Friday at 9:00AM, I hope to get all my questions answered.

Getting my shot tomorrow to bring my hemoglobin level up a bit- it is in my stomach which I HATE, but learning to just suck up any pain and deal with it.

Went to the pool again today!  Sorry MN peeps....Spring Break is so much fun!  Work a few hours, go to pool the rest of the day with friends and hang out at night with friends.  I felt like crap today so it was a good day to just lay in the sun all day.

Tomorrow is party with teachers- which are always fun to go and have girl time.   If it is nice I will work on my tan again before we go- Heather, Rumi and I are going to be so dark before break is over!!!! 

OK Then!

Still waiting...just received this email from UMC so I guess we still will not know anything for a bit.

Received Sara's Angio and have given it to the surgeons for viewing. We will let you know what they think as soon as we can.
Thanks!

On sunday we hung out at Sara's Pool all day which was a blast!  If we can't take vacation this year at least we can still act like we are on vacation!  It is spring break and the kids are having so much fun and so are the mom's :)  Here is Chuck (sara's best friend) and Rumi and me at the pool. And the kids! And us Girls!