Monday, August 15, 2011

Checkig In.

OK thought I would post since it is now 3 months since transplant!!  Just learning to start my life over again with a new routine of feeling good and still having to maintain the doctors and checking blood every week.  I started to work out again and noticed how bad I am out of shape!  I can't wait to tone up again as the muscle is all lost from the anemia.  So things are looking pretty good- we have to adjust my medication as some of my levels are off but this is just part of the process.

I am learning to not be scared when my white blood cell's are bad or creatine is raised or my shakes are so bad I can feel it in my stomach.  It is all part of the recovery.  It is nice to have my color back and now I want to do so many things I always put on the back burner.

I traveled for the first time to Minnesota to see my grandma and my girlfriends which was nice as Sara and my mom also went with.  I am still waiting a few more months to do a family vacation as I have to be careful of germs still.

Here is Sara and I at the airport :)


Thursday, June 23, 2011

Get me off the rollercoaster!!!

http://www.sarajaynegeorge.blogspot.com/  maybe Sara will continue to blog.....

I am not quite sure where to start.  I wrote an entire post then thought of the repercussions of people reading what my thoughts were this week and then deleted it.  It is very hard for me to share the deepest parts of my life with anyone and I think I really did share a lot since last fall.  Although if you read my blog and you actually hang out with me weekly or daily you would know I only told 1/4 of my story as the rest was just too hard to share- like how sick I was really was- how close  my kidney's were to shutting down completely.

So here I sit again, not wanting to share what is going on but needing to finish this blog and what I started as I am not a quitter.    It isn't that I want to leave anyone wondering or guessing it is just I like my private life private, I have never been one to talk about my problems with even my friends.   So I will end my blog with a brief idea of how my week has been and then share an article of a story written on us for the NATCA Insider.  I think Courtney has written our story better then we could have said it ourselves.  Not sure if I will ever blog again as I just don't know what it left to share.....

WELLLLL....Sunday was father's day and Alexa's birthday so I knew this was not a day I was going to relax.  when I woke up in the morning I felt just as I had years past- like I had the flu and out of breath,  Had to sit down in the shower.  This was going to be a very long day.   Needless to say I made it through and Monday wasnt much better.  By Tuesday I was getting nervous and called my doctor.  My creatine is up but not too high- so it is to be expected a bit.  I went from .08 to 1.19 - right before surgery I was at 9.0 but I don't want to see this number rising ever as it is scary that the kidney could fail.   And since my other kidneys are shriveled up as there was nothing left what would I be left with...3 kidney's that do not work!

OK- so took the girls to Hard Rock Pool today as Rumi was there with her family.  I was not feeling well again but pushed through.  Then I received a call from my Mom that my sister just found out her Creatine is rising also.  I just about lost it, it would be one thing for me to be sick but if something happened to Sara I would never forgive myself or be able to live with what I have done.    I text My Doctor at UMC Tucson which said this could be normal and she just needs to be tested again next week.  So Sara is going to see my Kidney Doctor just to make sure.

And that's my freaking rollercoaster- even though things are probably fine and my chances of rejection are very very small it doesnt make it any easier to swallow the pill when they say the numbers are going up.  And Sara can live a normal healthy life at 1.19 creatine but it still makes us both nervous that it increased in the first place!!


Still keeping my sense of humor and was able to joke around all night with Alexa and Jordan so that was my therapy.  But I have to say I had many moments today I wanted to fall on someone's lap and just break down, however the opportunity never arises so I just have to keep going.

OK- now you see why I dont want to blog anymore- I could do this every week for months- my numbers are up.... my numbers are down..... I dont feel good...... I feel great.  If anything ever happens that could be a sign of rejection I will post but until then....goodbye...and I hope to not post again!!!!

Here is the article:
A Member's Selfless Act to Help a Loved One
In an April issue of the NATCA Insider we covered the gracious actions of Las Vegas TRACON member Sara George, as she prepared for an upcoming transplant surgery in hopes of helping her sister, Molly. Molly had been diagnosed with a kidney disorder that soon escalated to full kidney failure, and in response, Sara selflessly donated  one of her own. Now, several weeks post-operation, we are excited to announce the procedure’s overwhelming success.
On the early hours of Thursday, May 12, the sisters entered University Medical Center (UMC) Tucson side by side to begin the long transplant process. In pre-op rooms directly across from each other, the two sisters prepared for their separate surgeries, which would ultimately keep them in Tucson for a full week from start to finish. Sara headed out first for her laparoscopic surgery which would consist of four incisions, and early afternoon, the surgeons finished connecting Molly’s new kidney as Sara headed to the recovery room.
Following the operation, Sara’s pain was horrible, as pain killers and IV drips filled the hours. While one sister faced excruciating pain, the other faced the overwhelming struggle of increased daily maintenance. Though it meant more immediate work for Molly due to her new 27-pill dose of medication and extreme vulnerability to germs, it meant 100 percent improvement in the long-run once the healing concluded. “No matter what we have to go through during recovery, it is all more than worth it,” said Sara of the rough days that followed. “Making Molly’s quality of life return to a mostly normal state is so worth any pain involved in the process.”
It’s a “rock star kidney,” as the doctor’s refer to it, and Molly’s body adjusted perfectly. On Sunday, Sara was released from the hospital, followed on Monday by Molly. They relocated to a hotel where they stayed in recovery for a few more days before finally heading home to Vegas. Before leaving, they were even asked to attend a press conference for UMC’s transplant program, where they highlighted their experiences and learned from others with similar inspiring tales.
Considering the seriousness involved in such a procedure, during which complications and rejections from your body can so easily occur, the process couldn’t have gone much smoother. “Molly and I were so lucky that we were not only a match, but a perfect match, and on top of that, the transplant and our recoveries (so far) have been perfectly smooth,” Sara posted to her blog on her first night back in Vegas.
“I think when you are in the situation that we were in, you try not to think of the gravity of the situation. That death is a very real possibility. Now that we are one week out of transplant and my kidney is doing so well in Molly’s body I can really appreciate all of the odds we overcame and how blessed we are...”
Graced with the talent of the facility’s two best surgeons, they couldn’t have asked for a better experience, according to Sara. “Molly and I were able to do something really special and something that is going to have a very positive impact on both our lives,” she shared. “I will forever be grateful to have such an amazing strong sister. I am so happy that I could be the one to help her get better.”


Sunday, June 12, 2011

One Month!!!

Just to think it was one month ago today that I was just waking up from surgery with a new kidney in my body.  Laying in a hospital bed in pain and trying to recover.  Had my staples out- funny story but not to post-  just know I had to drink wine to calm my anxiety before so you can imagine how I was in the Doctors office.  At least Sara and Mom were there to watch...LOL.

This month how times have changed.  Thursday was the last day of school at 12:45PM and we went to a pool party after which many screaming kids.  It was the girls best friends bday party.  So much fun and we stayed until 8pm and then the girls had their friends spend the night.  Didn't finish the night until 1:00AM so it was a very long day but a lot of fun.

Friday the girls got ready to go to Wisconsin to see Deacon's family and Friday Night I went with Mom to the Summerlin Room and did a little gambling.  I never gamble so it was fun to just get out and spend some time.  Then I met Rumi at Hooters on the Patio- it was such a lovely night we sat until there probably a lot later then we should have.

5:00AM Saturday Morning drove Deacon and the Girls to the Airport- boy was I tired!!!  But had to work a bit and get ready for Saturday night and Rumi's Birthday Dinner.  Took her to Mon Ami Gabi- once again on the patio we had so much fun.  Nice Wine and dinner and the weather was just perfect.  After we went to meet friends at Blue Martini- (Not my favorite FYI)  and then went to Yardhouse once again to the wee hours of the morning.  But we were out on the patio with friends and something about the wonderful weather makes you want to enjoy the cool night air and not sleep.

Sunday morning we got up- way too early!!  Rumi and myself went to meet the girls at the M Pool which was a lot of fun.  Although I had to SPF with 100- kinda funny and not soak in the sun it was still really nice.
My scar shows a bit in my bikini- but not shocking so I can handle this.  Stayed all day and then went to Hot and Juicy for Dinner- so much fun- our table was such a mess.  Who would have thought 8 girls could make such a mess.

So as I sit back and reflect on my weekend and how tired I am I realize how thankful I am to have my life back.  I am probably going a bit crazy with being busy and making plans but the girls are gone until next weekend and in 9 years I have never had time without them so I am really enjoying the ME time.

Busy week of work and still sorting through the Doctors bills and insurance and forms but it is a project I want to have done this week.  I haven't even checked the mail this weekend because I just wanted 3 days without having to go through all the medical stuff and just ignore it.  I am still going to stay active all week and enjoy my time.  I am also going to start getting in shape again- although I cant exercise in my stomach I can start to try and tone the rest of my body.  I can only say having anemia severely for a year has eaten away at a lot of my muscle and I need to regain my shape.

Tomorrow I see my kidney doctor and get my first refill on my prescriptions.  I am curious to see how much this is gonna set me back :)  Hope my numbers are still good and the kidney is working well!!



Wednesday, May 25, 2011

I am Home!!!

I have been home for 1 full day now and I am loving it.  Got to have lunch with Rumi and now I am getting settled into my new house :)

Still trying to take it easy and relax but it is so nice to see everyone again.  School is almost out and my girls are going to WI for a week- I wish I could travel this summer but it looks like I need to stay in Vegas for awhile to make sure things are OK.  What am I gonna do without kids for a week??  Should be too much FUN!!!

Here is Rumi and I :)


Sunday, May 22, 2011

I am ready!!!

I am so ready to get out of Tucson I just want to be home!!  Hopefully tomorrow at clinic they will release me, as I have been asking since Thursday to be released back to Vegas.  I feel really good just still a little sore and everyday my energy is coming back.

I just have to wait a few weeks to drive- I think I am going to wait until the staples come out at least.

Besides the press conference we have just been shopping, relaxing, watching movies and eating out.  The one thing I have realized being away is that I really do love my life and have so much fun everyday.  To be away from all of that just makes me sad so I can't wait to get back.

Here are a few photo of the press conference:

Waiting for the conference

Talking with PR and Transplant Coordinator





Chief of Surgery and My Surgeon :) 

My Doctors

Wednesday, May 18, 2011

First Drink...well fake drink :)

Finally got cleaned up and went for a drink by the pool.  Well that is if you count a virgin pina colada :)
But it still felt nice.  Each day I feel better and better and can't wait for the day I feel like I am healed.
My neck is all bruised from the catheter and it still hurts but I hope this will heal over time.  It was nice to hang out with the girls and Dad before Sara and Collette leave tomorrow.

Here are a few photo's of our outing.  Early day tomorrow- doctors at 7:30AM then the press conference at 11:00AM.






Tuesday, May 17, 2011

At the Hotel

Well I am finally at the hotel relaxing and showered.  What a relief to get out all the IV's and catheters.  I am bruised and have holes all over my body from all the shots they gave me each day for the blood clots but I know I will heal.  I am still very tired when I walk but know I will build up my energy.  I am going to start working today and right now I am by the pool eating lunch :)

Thanks so much for all the thoughts and prayers and text's and phone calls.  Sorry if I can't respond but it is very tiring to do almost anything right now!!

The only thing different I have noticed is I feel that I look different- my face and body is so foreign to me it is weird.  Maybe this is just in my head but I feel I am completely changed.  Here are a few photo's of recovery and the awful catheter that was in my vein in my neck and leaving the hospital and me at the pool today.  I would usually never ever ever let a photo of me without my makeup and hair done be posted online but I figured what the hell- this is what I look like after 4 days of not showering :)


Yes that was inside my neck!!!


Working by the pool