I will write later about what I learned at my dialysis class- although I wasn't paying as much attention as my sister or mother.
So just to give you the news of the day: They are setting up a meeting with the transplant center to start testing me to get me on the transplant list. I am also starting to get my testing done to put the tube in my stomach to start dialysis. I am not sure what the tube is called cause I was not paying attention- I was too busy giggling at the ant's that were crawling all over the room and on my family.
I also have to get cleared for the mass on my liver to make sure it will not interfere with my transplant so more Doctors and MRI again.
As I learn more I will let you know but for now what I can tell you is I choose a dialysis that is done through the stomach at home for 10 hours a night. We just moved into a 1 story house so I can drag the machine around the house and will not be strapped to my bed for that long.
Today I am thankful that this is not a death sentence but a change in lifestyle and I am thankful I have a job that I work from home and can even work in bed when needed. The scariest thing to me right now is not being able to wear my skinny jeans anymore- the tube is place right by the belt so I have to choose clothes that do not push on it :( BOOOO......
Here is a photo of what it will look like :)
Mols, I had no idea you had a blog but I am so thankful, it was my therapy and I hope it helps you to communicate so people/we don't all have to bombard you. I am praying for you, wish I lived down the street so i could come over and huge your neck. I love you so much, admire your strength and know you are going to fight like crazy. Know how many prayers are coming from here. All my love. Katie
ReplyDeleteMolly, there is not much to say except that we are praying for you, and that we love you and are so thankful that you are part of the family! Thanks for doing this to keep us all up to date.
ReplyDeleteLove, Mary
You are going to kick the sh*t out of kidney disease Molly!! You know how much i like to swear, so i had to keep it real :)
ReplyDeleteYou are one of the strongest people i know. You are a fighter and you never complain about your situation. What you need to remember is that there are so many people that love you and that WANT to help you!! Don't let your pride get in the way of accepting that help. Do not ever hesitate to call on Shelley and i for anything. We are always just a short drive away to pick up kids, go to the grocery store, babysit, cook dinner, do laundry, or anything else you might need. Please reach out on those days you need help. We love you and know you are going to be just fine. I hope we find a match right away.
Love you McB.
SJ