WOO HOO Sara's package arrived with the lab request in it so she can go give blood tomorrow :) I hope it does not take too long to find out if she is going to be my donor. I am chomping at the bit to get this surgery done and be back to resuming my life after a few weeks. I just don't want to wait any longer.
I have been feeling really good lately. I haven't said anything but UMC Tuscon told me to stop my medication as it could throw me into dialysis. I was scared that I would end up sick and shaking again like before but so far 1.5 weeks without it and I am still going strong.
I had such a wonderful weekend I really didn't want it to end! I am so excited to see what the future holds, only good times from here on out. After my great weekend I got to spend Sunday hanging out with the family, which was a perfect ending.
Sunday, February 27, 2011
Saturday, February 26, 2011
Cold weekend!
Its a bit chilly outside! Went to UMC yesterday and i start testing next week for umc las vegas donor list.
Still waiting on saras tests..could be a few weeks before we know.
Going to rebels game tonight and I cant wait! Another fun filled busy weekend.
Tuesday, February 22, 2011
Still Waiting
Sara finally heard from UMC Tuscon and they are mailing her a packet with her lab request in it to be tested. So once again we sit and wait. Another week of work...another weekend of fun! I really hope I can get the surgery before summer so I can still take vacation and live at the beach.
On a side note..The girls wanted Nerf guns at target...they have never asked for anything like this so I thought OK why not. Now I know what my girlfriends with son's go through. Getting hit in the butt with a nerf bullet, flying bullets everywhere and screaming....OH What happened to my quiet house??
On a side note..The girls wanted Nerf guns at target...they have never asked for anything like this so I thought OK why not. Now I know what my girlfriends with son's go through. Getting hit in the butt with a nerf bullet, flying bullets everywhere and screaming....OH What happened to my quiet house??
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| Hiding from the enemy...Jordan |
Friday, February 18, 2011
TGIF
They havent tested Sara yet- so hopefully early next week it will happen.
I am so thankful for Fridays!! And even more thankful my mom takes the girls...Thanks Grandma for letting me have fun tonight :)
I am so thankful for Fridays!! And even more thankful my mom takes the girls...Thanks Grandma for letting me have fun tonight :)
Thursday, February 17, 2011
Tuscon here we come...hopefully
Well we finally met with Tuscon Doctors today and what a difference!! There is so much to tell but I don't have much time as I have to go to a work meeting.
1.) They interviewed Sara about being a donor and just did a quick health screen. She is going to give blood and test this week. If she has any kidney problems she will be ruled out so cross your fingers she is 100% healthy.
2.) We will schedule a date if she is a match in the next few months and fly to Tuscon, have the surgery. They said I should only have to be down there 10-14 days if I bounce back because of my age and health. Then I will do my every 2 day check up for 2 months here in Las Vegas.
3.) The surgery is laproscopic so the recovery time is very short-which is great. They said the Marriott has all the shops and dining within walking distance. SO After my surgery I get to go out in town a bit, I can't wait.
4.) Most of the team is from Minnesota- which of course I love!!!
OK so just waiting to hear if Sara is healthy and we can move forward. Probably know in the next few days.
1.) They interviewed Sara about being a donor and just did a quick health screen. She is going to give blood and test this week. If she has any kidney problems she will be ruled out so cross your fingers she is 100% healthy.
2.) We will schedule a date if she is a match in the next few months and fly to Tuscon, have the surgery. They said I should only have to be down there 10-14 days if I bounce back because of my age and health. Then I will do my every 2 day check up for 2 months here in Las Vegas.
3.) The surgery is laproscopic so the recovery time is very short-which is great. They said the Marriott has all the shops and dining within walking distance. SO After my surgery I get to go out in town a bit, I can't wait.
4.) Most of the team is from Minnesota- which of course I love!!!
OK so just waiting to hear if Sara is healthy and we can move forward. Probably know in the next few days.
Tuesday, February 15, 2011
UMC Vegas
Well we met with UMC Vegas today to start the process. A Little skeptical that they only have ONE surgeon on staff. I am really gunning for UMC Tuscon to be my Hail Mary in my final hour. I meet with them on Thursday and hope to have more questions answered.
In the next 6 weeks I should have all the testing complete and be on the donor list. While I do appreciate that fact that I might be able to receive a cadaver donor I really want a living donor because the chances of a longer kidney life double.
My sister will start testing to see if she is a match but if she is not PLAN B goes into full effect for me searching quickly for another donor. Since my kidneys are failing so fast I really need to get a new one or I will have to start dialysis and not sure how I will work and pay my bills at that point.
70 degrees in Las Vegas!! If you live here there really isnt much to complain about- we are graced by good weather and plenty of vitamins from the SUN :)
OK going to give blood again!!! They are testing me weekly now to see how fast I am slipping.
In the next 6 weeks I should have all the testing complete and be on the donor list. While I do appreciate that fact that I might be able to receive a cadaver donor I really want a living donor because the chances of a longer kidney life double.
My sister will start testing to see if she is a match but if she is not PLAN B goes into full effect for me searching quickly for another donor. Since my kidneys are failing so fast I really need to get a new one or I will have to start dialysis and not sure how I will work and pay my bills at that point.
70 degrees in Las Vegas!! If you live here there really isnt much to complain about- we are graced by good weather and plenty of vitamins from the SUN :)
OK going to give blood again!!! They are testing me weekly now to see how fast I am slipping.
Monday, February 14, 2011
Happy Valentines Day
I am a big believer that friends make the world go around. Whether you are married, dating or single you should still take time for friends and have that special bond. There is nothing greater then 2 women or 2 men sharing a friendship. I have many good friends and each hold a special place in my heart. I have friends since the day I was born, friends I met in elementary school, friends I met in high school and friends I have met this past few years. I would not trade any of them for all the money in the world!!!
So on that note- my first friend EVER- since I was born posted this on my facebook. What a great way to wake up to a Valentines Day!! I couldnt ask for anything better :)
So on that note- my first friend EVER- since I was born posted this on my facebook. What a great way to wake up to a Valentines Day!! I couldnt ask for anything better :)
25 Reasons I Love YOU!
1. I love you because you were my first friend and molded my life.
2. I love you because in 35 years of friendship I can't recall an argument.
3. I love you because you always share your Burger King chicken sandwiches with me.
4. I love you because you had real toboggans.
...5. I love you because I smile every time I hear the name 'Molly'.
6. I love you because you will put a skirt on your head and dance around to cheer me up.
7. I love you because I ran into you during rush hour traffic on 494.
8. I love you because you wrote me letters while I lived in Tennessee.
9. I love you because you wrote me letters and drew me pictures while you lived in Hawaii.
10. I love you because you sent me rice candy.
now! I love you!!!
1. I love you because you were my first friend and molded my life.
2. I love you because in 35 years of friendship I can't recall an argument.
3. I love you because you always share your Burger King chicken sandwiches with me.
4. I love you because you had real toboggans.
...5. I love you because I smile every time I hear the name 'Molly'.
6. I love you because you will put a skirt on your head and dance around to cheer me up.
7. I love you because I ran into you during rush hour traffic on 494.
8. I love you because you wrote me letters while I lived in Tennessee.
9. I love you because you wrote me letters and drew me pictures while you lived in Hawaii.
10. I love you because you sent me rice candy.
now! I love you!!!
11. I love you because I can still spot your handwritting from a mile away.
12. I love you because you kept my secrets.
13. I love you because you would lie for me.
14. I love you because you are such a hard worker.
15. I love you because we did cheerleading together.
...16. I love you because your grandparents had raspberry bushes.
17. I love you because you are creative.
18. I love you because jumping in a pile of leaves and flashlight tag makes me think of you.
19. I love you because you can make up songs.
20. I love you because you let me nap
12. I love you because you kept my secrets.
13. I love you because you would lie for me.
14. I love you because you are such a hard worker.
15. I love you because we did cheerleading together.
...16. I love you because your grandparents had raspberry bushes.
17. I love you because you are creative.
18. I love you because jumping in a pile of leaves and flashlight tag makes me think of you.
19. I love you because you can make up songs.
20. I love you because you let me nap
21. I love you because we always went trick or treating together.
22. I love you because you are strong.
23. I love you because the best day I ever had was a day I spent with you.
25. I love you because we have the most wonderful friendship and memories that anyon...e could ever want!
Happy Valentine's Day to the sweetest heart I know! I love you!!!
Girls- I couldnt do it without any of you. I am so grateful to have Jill and Tracy be my rock back in Minnesota and Rumi and Holly be my rock in Vegas. I love all of you!!!!!
22. I love you because you are strong.
23. I love you because the best day I ever had was a day I spent with you.
25. I love you because we have the most wonderful friendship and memories that anyon...e could ever want!
Happy Valentine's Day to the sweetest heart I know! I love you!!!
Girls- I couldnt do it without any of you. I am so grateful to have Jill and Tracy be my rock back in Minnesota and Rumi and Holly be my rock in Vegas. I love all of you!!!!!
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| Jill and Molly |
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| Molly and Tracy |
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| Molly and Holly |
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| Molly, Kara and Brandy |
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| Misty, Jolynn, Cynthia, Molly, Brandy, Dinelle |
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| Kristina, Molly, Maria, Tracy and Denise |
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| Molly, Holly and Hedy |
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| Rumi and Molly |
Thursday, February 10, 2011
Over the shock.......
OK I am over the shock of the numbers being so crappy. It really is mind over matter and I feel great! I have a busy weekend and can't wait :) Tomorrow is going to be hard to work so maybe I will just go to work until Noon then grab lunch or shopping.
Deacon has off on Saturday so he is going to take the girls. I have a baby shower then it is off for some fun Saturday Night, not sure what we are doing but I am ready to get out of the house without my 2 little partners in crime ( I love them, but I love my breaks!!)
On Friday after school Alexa wants to go to the Titanic Exhibit so that should be nice and maybe catch a movie and dinner after for girls night, then I won't feel so guilty taking all day and night Saturday to myself!!
Deacon has off on Saturday so he is going to take the girls. I have a baby shower then it is off for some fun Saturday Night, not sure what we are doing but I am ready to get out of the house without my 2 little partners in crime ( I love them, but I love my breaks!!)
On Friday after school Alexa wants to go to the Titanic Exhibit so that should be nice and maybe catch a movie and dinner after for girls night, then I won't feel so guilty taking all day and night Saturday to myself!!
Mind over Matter
Well I am not going into too much detail today because I really do not feel like sharing what this really means but my numbers came in and I am at 11% function.
Saw the news last night and a Wake Forrest Coach gave his player a kidney after 3 weeks of finding out he was a match. I hope it goes that fast for me if I get a match next week. The coach was back to walking around after 2 days and they said the player would be back on the field playing baseball in 6-8 weeks.
I can't wait for the weekend!!!!!!
Saw the news last night and a Wake Forrest Coach gave his player a kidney after 3 weeks of finding out he was a match. I hope it goes that fast for me if I get a match next week. The coach was back to walking around after 2 days and they said the player would be back on the field playing baseball in 6-8 weeks.
I can't wait for the weekend!!!!!!
Monday, February 7, 2011
Is it a fluke?
I hate to put things in writing because I feel like I might speak too soon. But the past week I have been feeling better then I have in the past few months. Is it because I let go and decided to only let positive energy in me, is it just a bump? I have what's called a baseline which means my kidneys fluctuate and sometimes the GFR (which is basically my function) raises. I have had my GFR jump 6 points before and I really feel like it jumped up again. Last month I was at 15 so I am very curious when I go on Wed to my appointment what my new stat is.
Plus I can tell in my body- I have small bruises all over my legs and they are almost gone! I have gained 4 pounds which is hard to do right now. The black circles under my eyes are getting much better. I have not needed to take a nap the past few days and have energy to go the 12 hours I used to.
I must say from what so many of my friends and family tell me I am on many prayer lists and I truly believe all that energy has been passed back to me. By the grace of God I am healthy enough at this moment to enjoy friends and life. I don't want to have false hope so I am trying not to think maybe I am one of the 2% that goes into spontaneous remission but know that this is just him giving me what I was praying for to not be so sick.
If I can feel this way and get a transplant in the next few months then that means minimal interruption to my life which is WAY MORE then I could ever ask for.
If I keep feeling this way I think I should take the girls to Disneyland this month in case I can't travel the next few months if I get a kidney. I am thankful that their father will take them on vacations this summer so the girls still will get to do all the traveling they love to do! I want going to the Midwest and running in the grass, seeing the animals at the farms and walking to get ice cream be part of their memories as a child. Vegas is great and I love it but as a kid there is nothing like the country or the suburbs back home.
Ok I will write after my doctors appointment and let you know if I did go up on my numbers or if I was just reading too much into this right now. I can't wait for the weekend and Saturday....it is hard to work when I just want to have fun right now :_)
Plus I can tell in my body- I have small bruises all over my legs and they are almost gone! I have gained 4 pounds which is hard to do right now. The black circles under my eyes are getting much better. I have not needed to take a nap the past few days and have energy to go the 12 hours I used to.
I must say from what so many of my friends and family tell me I am on many prayer lists and I truly believe all that energy has been passed back to me. By the grace of God I am healthy enough at this moment to enjoy friends and life. I don't want to have false hope so I am trying not to think maybe I am one of the 2% that goes into spontaneous remission but know that this is just him giving me what I was praying for to not be so sick.
If I can feel this way and get a transplant in the next few months then that means minimal interruption to my life which is WAY MORE then I could ever ask for.
If I keep feeling this way I think I should take the girls to Disneyland this month in case I can't travel the next few months if I get a kidney. I am thankful that their father will take them on vacations this summer so the girls still will get to do all the traveling they love to do! I want going to the Midwest and running in the grass, seeing the animals at the farms and walking to get ice cream be part of their memories as a child. Vegas is great and I love it but as a kid there is nothing like the country or the suburbs back home.
Ok I will write after my doctors appointment and let you know if I did go up on my numbers or if I was just reading too much into this right now. I can't wait for the weekend and Saturday....it is hard to work when I just want to have fun right now :_)
Saturday, February 5, 2011
Happy weekend!!!
After a jewerly party with a few teachers, friends and wine this is what the kids get for a nice dinner! It is only 6pm and I am not ready to relax so maybe firepit is a good idea tonight. I am feeling so much better these past weeks it is hard to sit still. Happy superbowl tomorrow!!!
Wednesday, February 2, 2011
Dates are confirmed.
OK Happy Valentines Day to me!!! The best gift I can receive is getting both of my dates.
Feb. 15th 8:00AM UMC Las Vegas and Feb. 17th 8:00AM UMC Tuscon. They said we have to watch a video of kidney transplant. Not sure if they will make us watch an actual transplant or just a video explaining this.
We take this very serious but my family is a bunch of people who love life and sometimes that turns into jokes...a lot of them. So it is very hard to not make light of the situation and I am sure I will try and not crack jokes or giggle during the video out of respect for others in the room. But when I am with my sister sometimes I can't help it, I just love to hang out with her because our energy together is soooo positive!!
I am sure Deacon and my Mom will try to keep us under control but we sometimes act like 2 school kids!!!
I hope this goes the way I have it in my mind and that a transplant is soon. I want to swim in Sara's pool all summer, travel, hang out, go on walks, go to the park, hit the beaches. Summer is my favorite time of year- I love warm weather and I do not want to be at the doctors or on dialysis this summer. I just want to have my scar and tattoo to show off in my bikini at the beach!!!!
Feb. 15th 8:00AM UMC Las Vegas and Feb. 17th 8:00AM UMC Tuscon. They said we have to watch a video of kidney transplant. Not sure if they will make us watch an actual transplant or just a video explaining this.
We take this very serious but my family is a bunch of people who love life and sometimes that turns into jokes...a lot of them. So it is very hard to not make light of the situation and I am sure I will try and not crack jokes or giggle during the video out of respect for others in the room. But when I am with my sister sometimes I can't help it, I just love to hang out with her because our energy together is soooo positive!!
I am sure Deacon and my Mom will try to keep us under control but we sometimes act like 2 school kids!!!
I hope this goes the way I have it in my mind and that a transplant is soon. I want to swim in Sara's pool all summer, travel, hang out, go on walks, go to the park, hit the beaches. Summer is my favorite time of year- I love warm weather and I do not want to be at the doctors or on dialysis this summer. I just want to have my scar and tattoo to show off in my bikini at the beach!!!!
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