Going home

Hurray!  Sara gets to leave today and I get to leave on Monday.  Right now we are going to the hotel to rest and not sure when we will be cleared to travel.  But it will be so much better to get out of the hospital!!  Plus I can nap by the pool now instead of the hospital bed.

Here are a few photos of sara's visit to see me and her kidney!!

Visiting hours

Here is my aunt linda and me in the hotel suite



Sara came down in herwheelchair to visit me and her kidney.  It was good to see both of us up and healing on day 2. Hopefully sara gets to go to the hotel by sat. Or sun. And i get to go by mon. Or tue.

The cheif of surgery invited us to a party this week for some banquet for patients.  That should be fun.

If we both keep on this track we wil be back to vegas in just a week or two!!

Ok going to watch a movie!!

Leaving...

Getting on the plane to Tucson!!!!   Here is the crew....

Amazing...

For those that have not read my sisters blog it is worth checking out.  She is such an amazing person!!!  The link is at the top of my blog...sarajayne...

Leaving tomorrow at 6am..still havent even packed.  I should be doing a million things tonight but might just go to rounders instead.  Nothing like escaping my duties and just having fun :)

Still havent slept this week but i figure i will make up for that after surgery.   Wish us luck for our testing tomorrow!!!

Can't sleep....

Sitting here every night for hours and hours in bed just thinking about the surgery and how bad I hate my cath cause it still hurts.  I think i sleep about 2 hours a night right now.

So....dialysis....well....it was awful!!!  They took too many fluids which made me very sick.  My bones hurt so bad I was shaking.  This started about 20 minutes in and I lasted 1 hour and 15 minutes.  It was some of the worse pain ever..made my catheter pain feel like a paper cut and giving birth was a joy compared to this pain.

So now I sit awake wondering do I try it again tomorrow? Or just skip it and see what the surgeons say on Wed when we are in Tucson for our pre testing.  Such a struggle..not sure what the outcome will be...depends how strong I really am to go again and risk the pain.

I am so upset with myself for opting for dialysis in the first place and not sticking it out the 2 weeks.

Cant wait to be on the plane on wed....got my new bikinis to lay by the pool...in the 95 degree weather :) 

Side note...once again on cell blogging so ignore typing and errors!!

May maybe??

Just talked to UMC Tuscon and things are moving.  I finished all my tests so I am ready to go.  Sara has an ekg on Monday and then an angio (still to be scheduled).  The angio is to look at which kidney they are going to take.  After that test the board of doctors reviews our case and if all looks good they approve us.  Once approved we can have the transplant in one to two weeks.  So it looks like Tuscon in May sometime.

I am very excited to start the next chapter of my life but need to be patient.  I am also sad because my kids are going to be without their mom for 2 to 3 weeks.  I hope this won't be too hard on them,  Jo already asked for me to bring a big suitcase so she can hide in it.  Alexa isn't saying much but has told me that I always ruin their plans when I get sick.  I don't want her to be angry over this but she is already feeling very upset.  I try to give her lots of love but it isn't enough, she process's everything and if life isnt going exactly how she thinks it should be she gets very upset. 

All of this has made me feel bad as a mother.  I try to give them a fun loving life and it still is not enough.  When Alexa told me I ruin everything it broke my heart.  I think is this really too hard on her?  Or is she just spoiled going to the park and movies and dinner and disney all the time that when we have to sit at home she is just being spoiled. I wish someone could give me  the right answer.  I have never spoiled my kids with material things but I do over indulge in the time I spend with them and i think maybe this will make her stronger.  I guess I will have a lot of time to think about my relationship with my kids when I am away.

More updates...

While I am sitting in between appointments I thought I would recap last week.

Thursday I met with general surgery doctors.  My doctor was a kid, maybe 18 years old.   He told me he was a PA student so that explained the age, but when he went to examine me I thought, is this even legal?  I felt like it just wasn't right for him to see my stomach and chest...LOL.

Anyways after doogie howser left the doctor came in and said 2 to 3 weeks for an appointment for the tube to be placed.  I told him my story of being so close to the transplant so he assured me he would try and drag his feet so we can avoid the tube.

Then Friday I had both girls A honor roll awards.  Jordan's was fine and I even left a bit early because I was not feeling well.  By the time Alexa's had come around I was full blown sick.  I have about 1 to 2 bad days a week and Friday happened to be my day.  I feel weak and light headed and like I have the flu.  So as I am sitting trying to pay attention and act normal all I can think about it 1.  Am I going to faint.  2.  Should I go to the ER for dialysis  3.  My feet are so swollen they look like miss piggy!!  Everytime I get sick I need to decide if it is bad enough to start dialysis or if I think it will pass.  It was so hard to sit there and try to be myself when I was dying inside.

So...after school we went shopping and then to dinner with the besties (that is what the girls call ava, rumi and izzy)  by the time we got home I could not walk and was so sick with my stomach.  It feels like you have the flu extremely bad without ever throwing up.

I went to bed thinking this is it...I am going on dialysis tomorrow.  Well what do you know???....I woke up Saturday feeling great!  By 9am I had already been shopping and by 10am we were laying at the pool with good friends.  Stayed all day long and then went out at night until 130am.  I was so thankful to have passed that phase again without dialysis.

Let's just see how my bad day is this week.....

Ignore my bad grammar...on my cell phone and trying to type fast before the nurse calls my name!!

Love the weekend!!

Sara is moving on to next round of tests...ekg...chest xray.etc.

It has been a busy but great weekend!!  Perfect weather and laying at the pool all day with good friends.  The girls are pooped out but I still have energy so a trip to rounders sounds good.

Here is jo after a long day of swimming.

Free at last!!!

So yesterday my neph (kidney doctor) said if my levels go up I would need emergency dialysis.  This morning they went up .10 so I knew it would be a judgement call.

Since I feel good and not sick he is releasing me back into the wild!!!  Although I have to be monitored daily with blood tests and meetings that is only 1 hour each morning so I will take it!

I am hoping to avoid dialysis all together and go right into transplant but I will let you know :)

2 of my iron infusions are done...just need 3 more!  Here is me during my iron treatment.

I also want to say thank you to: jane, garry, deacon, alexa, jordan, pat, gary, rumi, holly, khamla, stefan, elisa, collette, sara, ethan, mike, rhian and many others for the flowers, magazines, stopping by for gatherings in my room, going to my dinner party even though i couldnt be there!!!  And thanks to all my girls back home who reached out by phone :)

This resort sucks!!

I am going to have to find the manager and complain!  The room service is too slow, housekeeping comes in at all hours and the movie selection isn't very good.  At least i was upgraded to a room with a view of tjmaxx...how lucky is that!!

Ok really the staff has been great!  Food really does sux.  They are keeping me one more night to make sure i am stable.  Still no dialysis as we are holding off for transplant.  Doctor said if saras test come back good it should only be a few weeks!  Cant wait to be back to a normal life!

Also there is an older lady who has been crying since last night...she sounds like a few month old baby so i get to listen to that half the time. I almost want to go hold her and tell her it is going to be OK.  Instead i put on beats by dre headphones! Thanks dad :)

Look who came to see me!  Sorry about my bad grammar...on my cell typing.

Hells Bells

Blood pressure spiked and ended up in ER.  They can get it to lower so I have to stay the night at this lovely resort with 5 star food.  I am so sick of all of this and just want it to be over!   On the bright side they said I could have had bleeding in my brain from the pressure but my cat scan came back clear!

Cold weekend!

Its a bit chilly outside!  Went to UMC yesterday and i start testing next week for umc las vegas donor list.

Still waiting on saras tests..could be a few weeks before we know.

Going to rebels game tonight and I cant wait!  Another fun filled busy weekend.

Happy weekend!!!

After a jewerly party with a few teachers, friends and wine this is what the kids get for a nice dinner!  It is only 6pm and I am not ready to relax so maybe firepit is a good idea tonight.  I am feeling so much better these past weeks it is hard to sit still.    Happy superbowl tomorrow!!!

Hockey night with friends and family!

Way to go number 5....looking hot out there!!!

And number 5 scores the winning goal....even sexier :)

Hanging out!!